tag:blogger.com,1999:blog-2536589548676100888.post8711526037341236638..comments2023-04-10T07:59:13.592-07:00Comments on Nephrotic Syndrome-: What a Year...Mcookhttp://www.blogger.com/profile/08377570438601971608noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2536589548676100888.post-4093387196091851882014-02-02T18:32:38.240-08:002014-02-02T18:32:38.240-08:00Hi Rizzy, thanks for your post! We were only given...Hi Rizzy, thanks for your post! We were only given advice on a low sodium diet as well. I do know of one Dr in ATL who suggests to his patients to try gluten free, however that is very rare coming from a MD! I am sorry you are having to go through this, I know it is so difficult with little ones :(. I encourage you to read up on autoimmune problems. Once I shifted my focus from the kidneys, to autoimmune, to the gut, things began to make a lot more sense to me! Someone explained it to me as a fire that gets set and you have to figure out how to put it out (calm the immune system). I wish you the best of luck on this journey and pray your time on steroids will be short lived!Mcookhttps://www.blogger.com/profile/08377570438601971608noreply@blogger.comtag:blogger.com,1999:blog-2536589548676100888.post-22721658014987221632014-01-18T11:59:13.703-08:002014-01-18T11:59:13.703-08:00Glad to hear Emma's doing well. My one yr old ...Glad to hear Emma's doing well. My one yr old son has just been diagnosed with Nephrotic syndrome (Dec 28th 2013), and having never even heard of the syndrome before It's a little over whelming to say the least. He's started a 3month course of Prednisolone, but it's been interesting to read of the positive results you've achieved through making dietry changes ( the only advice we've been give so far from the hospital is to maintain a low sodium diet). Pls continue to post on the blog with updates/tips. Very helpful! <br />Rizzyhttps://www.blogger.com/profile/07813536919368607157noreply@blogger.comtag:blogger.com,1999:blog-2536589548676100888.post-11349057913320930822013-12-28T18:08:33.481-08:002013-12-28T18:08:33.481-08:00The apple cider vinegar I use it raw and by Bragg....The apple cider vinegar I use it raw and by Bragg. It is gluten free. Sorry to hear about the long journey with your son. I know it is very overwhelming to consider going gluten free, but I highly recommend it! At least it's not medicine, right?! :) I would cut out dairy the first few weeks too, b/c the protein is so similar to gluten...then add it in and see how it goes. <br />Emma Kate is doing amazing. We are about to celebrate our 1 year med free and with negative urine! I will be updating the blog soon. Thanks for your post, and good luck with your son!Mcookhttps://www.blogger.com/profile/08377570438601971608noreply@blogger.comtag:blogger.com,1999:blog-2536589548676100888.post-16366162804471193542013-12-15T09:04:02.181-08:002013-12-15T09:04:02.181-08:00I thought apple cider vinegar contains/made with g...I thought apple cider vinegar contains/made with gluten???? Thank you for your blog! My son is 14 and has suffered with NS for 12 years :'( How is Emma doing? We have tried all med's for him..... even chemo over the summer. Just last week the Dr's mentioned going gluten free. Must admit it is very overwhelming to start plus expensive. Hope Emma is doing well!!! God Bless Anonymoushttps://www.blogger.com/profile/11749765485418044837noreply@blogger.com